A Little Help

 

Have you ever felt like you could use a little help? Who am I talking to, right? As caregivers a little help is great. One of the things we deal with is such a long laundry list of things that need to get done in a day. I'm sure our lists are all long, but they can vary based on the health and needs of our loved ones. My son is total care. That means I have to feed, change, dress, bathe, and transfer him over the course of the day. Although he is awake, he is not yet capable of doing much of anything. He can stand! That makes transfers easier, for sure.

Sometimes, an aid is provided. What they don't understand is that everything they do helps. Even the smallest things like sweeping the floors, dusting, or taking out the trash. Those are all things that I won't have to do if they do them. Recently, I've looked at pricing for hiring someone to come in and help clean my apartment. Then I thought, I'm hiring someone to do things the aid is PAID to do but doesn't want to do. 

I think to myself, I just need a little help.

While I was thinking about all this, a couple of scriptures came to mind. As believers, we trust in God for our help. I'll be the first to stand up and say that He has certainly carried me through many days I didn't think I could make it. He undergirds me with strength. He fills me with His peace and hope! He is indeed my help.

But how many times do we miss the little things He may do throughout our days? Situations that all of a sudden work out, may just be His handiwork. Psalm 28:7 says The Lord is my strength, my shield from every danger; I trust Him with all my heart. He helps me, my heart is filled with joy. I burst out in songs of thanksgiving. (NLT) 

Then of course my favorite is Psalm 121:2 My help comes from the Lord, who made the heavens and the earth! (NLT)

Today, I will remind myself that the Lord is my help. He carries me. He soothes my soul. He calms my emotions. He is with me. Even though I feel like I could use a little help with household chores - I know that God is the one who helps my soul. I will give Him thanks for being here to strengthen my heart so I can make another day - will you join me?

Streams in the Desert

Yesterday, I paid for a sitter so I could go on a day hike. I chose to go to the Wichita Mountain Wildlife Refuge. It's a vast place with many areas I have not yet covered even though I've been there exploring many times. I always learn from nature, maybe that's why I am so drawn to keep going back. Several things stood out to me but one thing I kept noticing was beautiful little flowers growing along the rocky terrain. 

Over the miles, I kept seeing these colorful patches of flowers in such unlikely places. I wondered how they grew in such adverse conditions. But all it took was a little bit of soil and a few drops of rain here and there to make a desert, wilderness area pop with beauty. Of course, I drew the parallel to our lives as caregivers.

We live in what can be very rocky circumstances as caregivers. On one hand, each day is the same over and over. Yet there are so many unexpected things that become the norm too. I know you understand that! We never know when an aid won't show, we have to call urgent care or the doctor, or what any given day may bring. Many caregivers, myself included, deal with loneliness of unheard of depths because our friends are long gone and the few we have keep a "safe distance" like we have the plague. Even with the bright spots and joys of caregiving, it can be a very difficult, rocky place emotionally.

Yet in the midst of it all, God remains faithful and somehow in those little areas here and there where we think surely nothing could grow- He brings forth beauty. We don't always sense it or see it ourselves, though do we? Yet here and there are pockets of intricately designed beauty wrought by the hand of God. 

He is still intimately connected with us as caregivers. He still brings the rain to water the soil of the driest hearts - even though sometimes they are watered with our tears. God continues to bring beauty from ashes. Actually, He appoints beauty for ashes for those who mourn in Zion. (Isaiah 61:3) I remember reading this and thinking, wait  - there's mourning in Zion? Zion is the City of God - His dwelling place and yet there is mourning there. Wow. Yet He appoints beauty for ashes, and the oil of joy for our mourning - right there where we are.

In our moments of mourning, living grief, sadness, loneliness - God brings beautiful growth. Just like the beautiful flowers in the midst of dry rocky soil - somehow He is able to bring a thing of beauty out of our lives. Oftentimes, we don't see it ourselves, but it's there. His handiwork drawing intricately beautiful spots in the midst of our wilderness.

Today, I'm going to thank Him for continuing to work in me - even in the midst. I will trust that He is bringing beauty even when I don't see it or feel it myself. I pray that others see the beauty He brings  as they are on their own journey of faith. I will ask Him to show me the beauty He as appointed to me - in Zion. Will you join me?

So Far So Good

Yesterday I lost a family member and somehow I think grieving losses like that are maybe not "more difficult" as a caregiver, but more complicated. If that makes sense.

Many caregivers, myself included, live with what is called a living grief. That basically means we grieve the loss of our loved one - but they didn't die. They are here - but they are not here. It's a grief that doesn't allow for any closure and it's ongoing. Then when you add any more grief on top of that - it's a very heavy load to carry. Fortunately, I know the Lord and I can take all my cares to Him and drop them off! (I know, that's not KJV!)

This morning I was sitting, drinking coffee and staring at the wall as it was all sinking in. I thought about not doing a devotion - I needed on myself. lol. I opened up an email and saw this scripture which was exactly what I needed to hear today. It's 1 Samuel 7:12. Samuel has just become judge in Israel and the Children of Israel had just torn down all the idols and returned to the Lord with a whole heart.

The Philistines approached and were hoping for a quick slaughter. But God had other ideas. Now Samuel was a judge and a prophet, but he did not know natural warfare. He could not lead the charge. God knew this - but I believe He saw the hearts of the people turning wholly to Him, and He applauded. Only to the Philistines it sounded like thunder and they got all confused. In the confusion, God and the Israelites wiped them out that day!

Then comes verse 12. Samuel sets up a large stone and named it "Ebenezer" which means stone of help. And then he said, up to this point - God has helped us. That just clicked with me this morning. Up to this point in my life, God has been my help. And as I face another day of caregiving and a season of grieving - He will still be my help.

My loose translation of that is so far - so good!  God has been my help, He is my help and He will continue being my help. Now that I can hold on to for today as I turn my heart wholly to Him and do the real work - resting in Him.

Today I will remind myself of God's ever abiding presence. I will acknowledge His help throughout my journey and use it to remind myself that He's still here for the rest of the journey as well. So far God has helped me - and He has no other intentions just because my world got rocked again. My thoughts will be on how I can rest in Him and how I can let Him be my help, my source, my everything. And just like all the other days - I'll trust Him. I'll wait for Him. I'll rest in Him. Will you join me?

No Sleeping on the Job!

Sometimes the caregiver is left floundering on their own and sometimes there are organizations or individuals who help them out. There are programs to help pay for aides and supplies that are very beneficial for helping us stay sane. When I have an aide it means I get out a little more to run, or run errands and that is good. There are nurses who come periodically to check my son out and see that he is healthy and being taken care of. Family members often sit with my son so that I can do things I enjoy or escape for a weekend. I am very appreciative of this "village" that helps me out from time to time.

However, I learned a long time back when this caregiving journey first began that my help comes from the Lord. I had no idea of the the types of situations and decisions I would be facing on a daily basis back then, but I knew if I was going to survive I would have to look at Him for my help. I began to meditate on Psalm 121 while we were still living in the ICU waiting room. I stayed there day and night for 3 weeks before we moved to an isolation room on a regular floor where we remained for over 3 months.

A few days into our ICU stay I was in prayer and thought about all the wonderful nurses and doctors who were providing exceptional care for my son. But as I was thinking about what a great job they were doing I also realized that they couldn't help me. They could talk to me, calm me down, try to ease my fears...but they were not my help - only God could under gird me in the time of trouble.

One of my son's friends had loaned me a guitar for the hospital stay and I sat down and put some chords and a melody to Psalm 121. I knew I would have to look to God for my soul's help, for my peace and comfort and that He alone was my true help.  I knew I was in a position to look to Him and only Him. As the last 7 years of caregiving have unfolded, I continue to look to Him for strength, comfort and wisdom as the daily walk continues and I meditate on this psalm often.

I will look to the Lord

Where does my help come from? 

My help comes from the Lord

Who made heaven and earth

He will not allow your foot to slip

He who keeps you will not slumber

Behold, He who keeps Israel 

Will never slumber nor sleep 

It's such a comforting thing for me to know that God's not sleeping on the job! He is always watching over my soul and keeping me safely tucked in His own heart.

Today I will meditate on the fact that He does not rest; but He continuously keeps me and watches over my soul so that I do not faint. My thoughts will be on the truth that He is always on the job and He never even takes a break to rest. And I will rest knowing He is my peace and strength. Will you join me?

If you'd like to see the video I made of the song I wrote after I got in my son's room you can see it on my facebook page here: Psalm 121.