Held Up

 One thing I hear from caregivers a lot is that there is often not enough help. Recently, I requested a few hours of respite just because I literally have zero breaks. For many of us, it's a 24-7 deal. Even for those whose loved ones can be left alone for any amount of time, it's still rough. Someday, I'd like to go somewhere and not feel like I have to watch the clock so closely. Even if we are given a few minutes or hours to ourselves, we can't turn "off" all the caregiving switches. Right? Who will admit to running caregiving errands while you are being relieved by a sitter or another caregiver? (We all do.)

Anyone who tells you that caregiving is easy - just hasn't done it yet. It is indeed a labor of love. It may be instinctual. It is what we do. But the journey is rocky and rough at best, even if things go smoothly for 10 minutes now and then. (Lol.) So many factors feed into a single day; it's quite overwhelming, at best, even when things are good.

I was so happy to find this verse that lept out at me during my private devotion time this morning. I found myself in Colossians 1. In verses 15 to 17, Paul is talking to the new church about Christ, His role, and His power. In verses 16 and 17, he said, Everything has been created through Him and for Him. He existed before everything else began, and He holds all creation together. (NLT,1995)

When I read that last part, my mind when through a series of thoughts like scrolling through a PowerPoint. I thought, "He created everything. I'm an everything." Since He created me - and He holds all creation together - He's holding me together! I liked the picture that those thoughts formed. On those days when I feel like I just can't do one more thing - He holds me together. When my month has several days left, but the bank account is empty. He holds me together. When Chris is sick, and I'm trying to decide on the next level of care. He holds me together. I know that this is not really what Paul was talking about - but I also know that there are many days that He is the only thing holding me together.

Today, my thoughts will be on how He holds me together and holds me in His heart. I'll think about the image I have of Him just holding me close. When I am trying to piece together this puzzle called life - I will trust Him to hold me together. It's so amazing that this big, big, God stoops to be part of our day-to-day. But I'm glad He does. Will you join me as we let Him hold us together today?

Caregiver's University

As caregivers we are able to get in there and get things done. It sort of comes with the territory. No matter what our basic personality is, in just a short time of caregiving is good schooling on this topic. We learn rather quickly that in many cases, advocating for our loved one means rolling up our sleeves and getting 'er done.

Too bad there's not a Caregivers University where we can go to learn the skills needed. We could get a diploma once we learned it all and of course passed our internship where we learned all the ropes using a hands-on approach. Of course I am speaking tongue-in-cheek as it would be impossible for someone to teach us what we've learned.

Of course there is no such school and we are not going to get a diploma for our learning. But we do a lot of learning about a lot of things once we become a caregiver, including things about ourselves. Even though I'm pretty high strung and hyper most of the time I let a lot of things slide as a person. I wouldn't get in there and fight for stuff - I'd just take the wrong and walk away in most instances. Early on in the caregiving journey I learned that this approach was not going to work, People do not just do their jobs - they want to do as little as possible and still get paid. That can lead to some frustration for us. Until we learn how to fight.

During the four months we stayed in the hospital after my son's initial head injury, I learned that something Madea said was true. She said you only have to go crazy up in here one time. And I did that. It was premeditated I will admit. And I purposefully went out into the hall to throw my fit to get everyone's attention. I threw a good fit too and they came running! They took care of a very serious situation with my son that was having to wait until they were done with break. Suddenly every RN up there knew how to take out an infected, clogged catheter.

But as tough as we become or learn to be there is still an underlying humility, or there should be. Let's face it, there are parts of our job that others are not willing to do. We don't go around talking about those midnight messes we have to clean up and things like that. How can you not be humble when you are meeting the very basic personal needs of another person. Things others won't think of stooping to do? Humility comes with the package too, just like tenacity. They work together to make us stronger, better individuals.

James 4:6 says that God gives grace to the humble. When I was in the church scene sometimes we were indirectly taught that we could take a scripture and wave it around in God's face long enough to get Him to do what we wanted. It wasn't on purpose but we were sort of taught to be full of pride and come to God like I did in the hallway at that hospital in Shreveport. Screaming and yelling and telling them all what-for! But God acts on true humility.

In the next verses it says if we draw near to God, He will draw near to us. We don't have to act up to get His attention, we already have it. Micah 6:8 says that all God requires is for us to walk humbly  with Him. True humility has us walking alongside Him, but never out in front. Never with our fists raised in the air (although I have thrown a few fits with God too....they didn't work.) but with humility.

It takes true strength to lose ourselves enough to be humble with Him. Humility is not weakness, although it is often mistaken for it. Humility says I yield to You and Your work in my life. We become the sheep, and let Him be the Shepherd. That can be difficult for caregivers, especially since we are so used to getting things done. 

Today I will slow down and walk humbly with Him. Not out front, not lagging behind; but alongside Him so I can be with Him on this journey. My meditation will be in Psalm 100 - I will think about how I am one of His people and a sheep in His pasture. I willingly submit my will to His today and let Him shepherd me. I will ask Him questions - and then wait for His answers. Will you join me? 

We Still Look the Same

So many things may have changed when we became caregivers. For me, I had gotten rid of everything and moved to Chicago from the deep south and was working three jobs in preparation for heading to the mission fields in South Africa. But like many, my plans came to a screeching halt with a single phone call informing me my son had been in an automobile accident and had been medi-flighted to a local hospital in Shreveport. From there the changes were astronomical.

I booked a flight to Shreveport and lived in the hospital for 4 months as I sat by his side. We then went through a series of nursing homes and rehab facilities until I could get my own apartment and have a place to "bring him home" to. It's an understatement to say that everything changed. I now work from home as a writer and have a decent little apartment near my family in Oklahoma.

Over time we all change, we evolve into different roles as life throws new things at us. We develop character as we embrace life changes. I think as caregivers we get used to rolling with the blows since we never know what a day is going to bring and who we may have to confront on behalf of our loved ones. For me - recent changes include stepping into  more of a caregiving role with my parents as they age as well. Even though this brings more changes I still look the same.

Of course I don't look the same physically as I did when I began this caregiving journey, I'm a little fluffier and more wrinkled for sure - I'm not nearly the same person I was. I don't put up with as much silliness and I basically have learned how to fight for others. We learn new skills like advocating on behalf of another and dealing with people who don't want to do their job like aides etc. Supplies -- there you go - just getting the supplies that we are due can be quite a journey. Perhaps we don't think about it - but all these struggles and situations mold us into a new person.

No matter what changes we endure - we still look the same to Him. God still sees us as the exact same person as He always has - and He always will. I think we could compare it to how we see our kids. They grow up and eventually leave home to raise their own family. And even though they go through many physical changes they remain "our little girl" or "our little boy." God sees us like that -- we are still His little girls and boys.

Psalm 139:13 states that He wove us in our mother's womb and that He formed our inward parts. I think that means the insides that make us who we are -- not just our intestines, heart, and liver. Job said it like this: You clothe me with skin and flesh, and knit me together with bones and sinews. (Job 10:11) To me this means God sees us from the inside out - He sees us like we really are - what makes us "us" and then He put skin on it. So even though our worlds turned upside down or topsy-turvy we still look the same to the one who loves us most.

Today I will meditate on how God sees the real me - and continues to love me. I will turn my meditations to how He chose for me to be on this planet and even though He put skin on the "real me" He sees way deeper than that. I will think about His closeness today and how He loves me with or without skin on! Even though people treat me different and aren't sure what to do with me - He still thinks I look the same....and He loves me. I'll think about His great love and compassion for me today - will you join me?